In 2015, they managed to sell the business and moved to Gloucestershire to be closer to Becky's two other siblings.
After Jono submitted his claim for compensation an offer was made two years later - but it was just under a third of what he had claimed for and he rejected it.
It took him a further two years to resubmit his claim because of the time it took to gather new information, including medical reports.
But after waiting seven months, his case was transferred in April into a new appeals process, the HSSA, run by the Department for Business and Trade (DBT). Jono passed away before securing an outcome.
"He died without knowing, and that's heartbreaking to us, because he deserved so much better," says Becky.
Jono had only received an interim payment from the Post Office which he had used to buy a small caravan in a holiday park near Cirencester where Sarah still lives.
Sarah says Jono had been "obsessed' about securing his full financial redress not just as vindication that he had done nothing wrong but to start a new life with his own permanent home and garden, "somewhere in the sunshine".
"If he'd had that compensation, I think he would have been OK. We wouldn't be worrying. He wanted to move away from England. He felt England hadn't been kind to him."